Today I decided to change Hospice companies. The last nurse didn't offer the support that I felt like I needed. Last night I really felt like I needed the nurse to come to the house when I felt like Kent had, had a stroke. She told me to read the pamphlet and she would come out the next day. Tammy and Michelle flipped out, and they were really pushing me to change as well.
The old nurse did come today, and I still didn't feel comfortable with everything she said. She came this morning before I had the chance to call and change. Later this evening the new nurse came. Her name is Carma. She was fun, and really kind. We went over all of the previous companies medication idea's and other information. Me and both of the girls were overwhelmed at how much better we feel with this new company. She told us to feed Kent, to give him the heart medication that make him be not a-fib. Everything just felt better. She kept saying yes he is dying, but he is alive now. Overall she felt like he was healthy. His heart and vital signs were high, but stable. She did however put him back onto his heart medication. She felt it was a bad desision to take him off of his heart meds. The doctor agreed. They make him comfortable.
This all sounds like good news, but there is some bad as well. Kent does display all of the symptoms of another stroke. According to the nurse her guess would be stroke. His speech is slurred, he is very confused and agitated. But then the rest of the time he is so sleepy that he cant keep his eyes open. He stares at us when we ask questions, often not even acknowledging that we have asked anything. He cannot walk on his own. He is leaning to one side, and his face is a little droopy on one side. We are using the wheel chair or walking with 2 people, one on each side. We are back to feeding him, and soft food. But he still enjoys his diet Pepsi. He seems calm, and not to emotional. That is comforting.
In all of this we are changing his medications again. The nurse thinks that he is quite over medicated. And that this last stroke may not be as bad as it seems. She thinks this because of the overwhelming amount of medications that the last hospice has had Kent on. Only time will tell what will happen now. We are just looking forward each day with hope that Kent will be able to communicate a little better.
Friday, May 15, 2009
Another Change
at 6:29 PM
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3 Snappy Comments:
Shirley & Kent, you are in our prayers.
So many wonderful and fun memories of Alaska & Canada. The drive down the Cassiar and what our cars looked like. The bear watch, the drive up the rubble pit of a road to the glacier and all the way Kent saying "Shirly, watch the edge, be careful, look out for those boulders, slow down". My remembering Skip & my anniversary as the four of us were having a late dinner in the only "good" restaurant in all of Stewart/Hyder. Remember the old school bus painted blue that was a fast food place with the bus seats outside for seating? So many wonderful memories. Will keep you and your family in our thoughts and prayers as this difficult journey continues
Sheila & Skip Dwyer
Dear Shirley & Girls -
I have been silently praying that you would change hospice companies. When I read Michelle's blog first, last night, my thoughts were - "That is so wrong, they really need to change... that is their job (hospice) - to come when needed, as needed regardless as to "what" they think is right - you are paying them...." I didn't dare say anything, I just decided to pray.... I'm so glad that you changed - and even more grateful that you are feeling comfort and even peace.... it is felt in your writings. We will continue to keep all of you in our prayers! You deserve support....no matter the outcome.... it is no doubt a difficult journey to endure, BUT it should not be miserable.... you should have peace and comfort.... that is what "hospice" is... "To provide support for the patient and patient's family in their emotional, social and spiritual needs as well as medical symptoms for the patient." I'm so glad that you are feeling better about things... Thanks for keeping us posted.
Sending all our love, thoughts, and prayers for the comfort that you need at this time.
LOVE YA ALL!!!
Celeste is here with me right now, so she has let me use her username and password. I still have to set this up for myself. I received Michelle's e-mail and will call Lorin for you. We are so glad that you have switched to a hospice company that is responding and handling things better. We are so sorry that Kent has had another stroke. We are very tender and prayerful for him and you, Shirley, as well as each of your children and grandchildren. We love you dearly. I don't know if you received my e-mail yesterday, but thanks millions for hosting Dee while she was there in Utah. I know she got sick and didn't get to stay the whole time with you, but she was touched from the visit she did have and came back with sweet feelings for both of you. She is such a wonderful girl! We are excited about their official engagement...which we hope you know about by now. Please know that you are on our minds, in our conversations and prayers every day. I hope to make it over soon to see you -- Barbara and Annette wanted me to wait until they got back from New Mexico.
Love, Marva
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